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‘My son has childhood Alzheimer's - I mourn the future he'll never have'

Often referred to as 'childhood-onset dementia', the family of 17 year old Logan share their devastating story on how they cope with one twin who lives with a rare and terminal disorder

Seventeen-year-old Logan Pacl suffers from Sanfilippo syndrome, often referred to as 'childhood Alzheimer's' or 'childhood-onset dementia' and his family have shared their deeply personal journey or raising a teenage son with a rare and terminal disorder. This genetic neurodegenerative disorder is caused by a single gene defect that specifically attacks the brain and spinal cord of children, gradually erasing any skills they once had. The procedure was risky, involving chemotherapy to destroy Logan's immune system before introducing new stem cells that could potentially produce the enzyme his body was lacking.

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