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Jesy Nelson’s Twins Were Diagnosed with a Severe Disease. Thanks to Her Campaign, All Newborns Will Now Be Tested for It: ‘No Baby Will Be Missed’


Jesy Nelson tearfully shared that the U.K. will begin universal testing for spinal muscular atrophy (SMA) — a milestone victory she’d been campaigning for ever since her 14-month-old twin daughters, Ocean Jade and Story Monroe, were diagnosed with the devastating muscular disorder

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Jesy Nelson

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Jesy Nelson says 'I feel so proud' as she celebrates a huge win in her SMA campaign and confirms screening test will now be rolled out across the whole of the UK